在這個遊戲裡所有參加者都是平等的，參加者以同樣公平的條件公平競爭。我是給外面的世界遭受不平等待遇和歧視的人們最後一次機會，得以公平競爭取勝。

——魷魚遊戲

Equality. Everyone is equal while they play this game. Here, the players get to play a fair game under the same conditions. Those people suffered from inequality and discrimination out in the world, and we’re giving them the last chance to fight fair and win.
— Netflix Squid Game.

Netflix #squidgame #鄭浩妍 #韓國 #韓流 #韓娛 #韓劇 #정호연 #HoYeonJung #오징어게임 #SquidGame #넷플릭스 #美劇 #電影 #連續劇 #韓國藝人 #blackpink #孔劉 #fanart #illustration #illustrator #theposterposses #illustration_dpi

關於白化症

一兩個禮拜前吧
民視的記者聯絡我說要做這個專題的報導👇👇

《有遺傳性疾病該不該生？白化症夫妻共組家庭的故事》
https://fb.watch/8itY3zsmOZ/

其實
我已經很久不接受電視媒體的採訪了
理由很簡單
我現在很討厭台灣那種很負面跟斷章取義的報導方式
（當然每次都把我拍的很胖這也是很討人厭的地方阿不是）

經常性的
我們講的話都會被截斷跟失去原意變成記者想說或想要聽到的話
然而
這次我會願意接受民視的採訪
最主要還是認為這個報導很有意義
所以我才接受
當然
在這麼短的採訪當中（雖然其實我說了很多）
但很可惜重點還是沒有辦法被完整保留下來
但是
在現在流行搏眼球灑狗血的新聞主流當中有人還願意關注這種題目這還是值得被肯定的

所以
我今天願意特別再說明一次

其實
在白化症這種事情上
或是在其他很多醫療上的決策
我們真的沒有權利幫別人來做決定
即便
我是醫師也是一樣

這樣說吧
非引導性諮詢（Nondirective counseling）
是我們這個領域目前的臨床實務準則
這什麼意思？

這樣說吧
從1960年代開始
我們的遺傳諮詢一直遵循的就是這樣的法則
也就是
專業醫護人員的責任
是告知病人即將面對的狀況
但必須尊重病人自主決定的權利
盡量不要引導病人依照醫師的想法去做決定
我說盡量
其實過去有很多的討論在實務上要醫師完全中立幾乎是不可能的
這個水很深我們今天就不討論了
但就是盡量

我們必須盡其所能不帶情感的以中性的角度來陳述醫學上的事實與風險
但是
絕對不包含決定
最終的決定權
還是必須經由當事者根據自身的最高利益原則來做出回應

為什麼要這樣做？
你直接給我答案不行嗎？

其實
你可以把這當作是種來自醫師專業權威背後的反思

我們來說個故事
有聽過優生學這個詞吧

優生學
是來自於英文的eugenics
一開始是19世紀後期英國遺傳學家Francis Galton提出的
希望透過有計畫的篩選與操控
使人類基因擇優汰劣
形塑更優良的後代
而這樣的思維
在20世紀許多國家成為顯學
作為促進國民健康的政策手段而奉為圭臬
誰知道
這樣的理念到最後竟然成為希特勒針對罹患特定遺傳性疾病給予絕育措施
然後對這些遺傳疾病患者實施安樂死
到最後竟然擴大形成對於猶太人的大屠殺

延伸閱讀👇👇👇

https://pansci.asia/archives/144524
從優生學到大屠殺 │ 科學史上的今天：07/14

所以
其實知道這個典故的人
我們都不太喜歡優生這個字眼

Discrimination
歧視
是我們最在乎的

你以為的理所當然
有時候並不盡然是如此

台灣加油
也歡迎大家把你的觀點寫在下面喔

關於遺傳諮詢👇👇👇👇

關於終止妊娠
https://drsu.blog/2017/09/11/super-170911/

我希望下次可以很快回來找你
https://drsu.blog/2019/03/17/super190317/

唐氏症會再發嗎？
https://drsu.blog/2019/09/16/super190916/

我們都太容易想要放棄
https://drsu.blog/2019/09/10/super190910/

來自香港的求助訊息
https://drsu.blog/2019/12/20/super191220

超過34歲就不能做頸部透明帶嗎？
https://drsu.blog/2020/05/27/super200527/

再來聊聊墮胎權
https://drsu.blog/2019/10/01/super190930/

關於三胞胎減胎
https://drsu.blog/2017/09/12/super-170912/

2020新年快樂—關於遺傳諮詢
https://drsu.blog/2020/01/02/super200102/

看新聞學醫學系列九
https://drsu.blog/2020/12/10/super201210/

關於基因檢測
我都放在這裡
有興趣的可以慢慢看喔👇👇👇👇

https://drsu.blog/category/基因檢測與遺傳諮詢/

蘇怡寧醫師愛碎念2：破除孕產迷信 打擊偽科學

(110/09/22開始預購)(110/10/01出版)
親簽版博客來【7-11、海外】
https://reurl.cc/52qYY7

蝦皮拍賣【全家、7-11、郵寄】
https://reurl.cc/95X22a

好的
各位新同學
我們有目錄
要發問前可以先找一下喔👇👇👇👇

導覽目錄在這裡
https://drsu.blog/2017/12/18/super-list/

不然
置頂文也有👇👇👇👇

https://www.facebook.com/100047331422378/posts/192828068971573/?extid=0&d=n

對了
有同學說我寫太多很難找
關於這點我很抱歉
可以善用搜尋功能喔👇👇👇👇

https://drsu.blog/2018/01/01/super180101/

關於基因醫學部落格在這裡👇👇👇
https://sofivagenomicsblog.wordpress.com

史瓦帝尼認為排除台灣違反聯合國憲章

史瓦帝尼總理戴克禮敦促聯合國考慮讓台灣有意義的參與，尤其是WHO、ICAO及UNFCCC，納入台灣，聯合國才有希望實現它的目標，平等顧及各會員國的利益。

自疫情以來，台灣持續向世界各國分享經驗與資源，與聯合國會員國一起實現聯合國大會主題，將台灣排除在聯合國這個理應服務全球公民的體系之外，並歧視台灣人民，嚴重違反聯合國憲章不可撼動的原則。

台灣的夥伴價值，值得聯合國重視。
—
Thanks to #Eswatini Prime Minister Cleopas Dlamini for his words backing #Taiwan's meaningful participation in UN systems at #UNGA76:

"The persistent exclusion of the Republic of China (Taiwan) from the United Nations and the discrimination of its citizens in a system meant to serve international citizens, is a gross violation of the unshakeable principles of the UN Charter. Since the start of the COVID-19 pandemic, Taiwan, in solidarity with UN Member States, made a significant contribution in realizing the theme of this year's session.

Eswatini would again this year continue to urge the United Nations to consider the meaningful participation of Taiwan, especially in the World Health Organisation, the International Civil Aviation Authority and the United Nations Framework Convention on Climate Change. With this inclusion of Taiwan, it is our hope that the UN will be living up to its objectives and equally serving the interests of all its member states.

The path to 2030 on the attainment of the UN SDGs was dented as a result of the pandemic, and Taiwan, adhering to the principle of leaving no one behind, shared its disease prevention expertise and experience with more than 80 countries and further assisted 40 countries make headway in ICT, agriculture, education and health.

Furthermore this year, in demonstrating that 'Taiwan Can Help, and Taiwan is Helping', Taiwan continued to send medical assistance, in the form of medical specialists and protective equipment for Eswatini’s health sector. It is in this light that we call upon for the recognition of Taiwan's efforts for the global well-being.

Lastly, the Kingdom of Eswatini can attest to the fact that Taiwan is an indispensable partner and would, if given an opportunity, play a meaningful role in the global body."

Taiwan's vision of global partnership can serve as a valuable reference for the UN.

#PartnershipForTheGoals

Rishabuくん https://instagram.com/rishabu_desuyo?utm_medium=copy_link
Adrienneちゃん https://instagram.com/_pastelwaifu_?utm_medium=copy_link

★チャンネル登録、SNSフォローお願いします:)
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★The opening & ending song (オープニング&エンディングソング) "Guapanese - Kisho & Bfree"
https://youtu.be/2rokPFll2uQ
★BGM
Kisho - Don't Use Me (prod. Lucas)
https://youtu.be/Xq42bBpo7GM

★俺の音楽はこちらから (my music platforms) https://distrokid.com/hyperfollow/kisho1/guapanese-feat-b-free
Soundcloud https://soundcloud.com/user-676420164/before-you-die-kisho-feat-chow-mane-prod-lucas

#japan #英語 #外国人

*Don't forget to turn on【CAPTION】
/In 2020, we have all experienced an extraordinary year. #covid19
Some people are unemployed, some lose their health, and some are homeless. But some people are desperate for racial equality. #Blacklivematter
And I also entered another stage of life. We had a virtual wedding and left the U.S.

🙋🏻‍♀️Chill with me
SUBSCRIBE: https://reurl.cc/x0Vezb
INSTAGRAM @mik.63

💁🏻‍♀️music
Music by Mr. Jello - Wild Willow - https://thmatc.co/?l=31C9CB9B
Music by Naomi - Osaka - https://thmatc.co/?l=A8D039B0

0:13 Background: Time, Location｜The actual situation
01:35 The impact on my life｜"True Love" cost money
03:31 black live matter ｜Fake reporter
04:52 The follow-up of black live matter｜My feelings
06:10 Unemployment in the US｜Why We Left the U.S.
06:47 Virtual wedding at home ｜About the wedding
09:39 Honeymoon | Self-prevention of Outside | Public Epidemic Prevention in the US
12:11 Discrimination because of wearing a mask｜Stop Asian Hate
12:31 Back to SF｜Move home again
14:31 What is the difference between Lockdown in the Bay Area and Taiwan?
15:08 What I want to say ｜the reason for getting married
16:38 NG Fun

I share my story about mental illness with Dr Farihah of HDOK , Sandakan.

I think first of all, I would like to clarify what STIGMA and DISCRIMINATION means because sometimes the two are confused with each other.

STIGMA - someone sees you in a negative way because of your mental illness
DISCRIMINATION - someone treats you in a negative way because of your mental illness

So STIGMA happens when a person defines someone by their illness rather than WHO they are as an individual. For example, they might be labelled “psychotic” rather than “a person experiencing psychosis”.

Second is to understand what is a mental illness

There are many different conditions that are recognised as mental illnesses. The more common types are:

Anxiety disorders
Mood disorders (eg Bipolar)
Psychotic disorders - hallucinations, delusions , schizophrenia
Eating disorders - Anorexia Nervosa, Bulimia Nervosa, Binge eating
Impulse Control & Addiction disorders (kleptomaniac, pyromania, compulsive gambling)
Personality disorders
OCS
PTSD

Seven Things You Can Do to Reduce Stigma

* Know the facts. Educate yourself about mental illness including substance use disorders.
* Be aware of your attitudes and behaviour. Examine your own judgmental thinking, reinforced by upbringing and society.
* Choose your words carefully. The way we speak can affect the attitudes of others.
* Educate others. Pass on facts and positive attitudes; challenge myths and stereotypes.
* Focus on the positive. Mental illness, including addictions, are only part of anyone's larger picture.
* Support people. Treat everyone with dignity and respect; offer support and encouragement.
* Include everyone. It's against the law to deny jobs or services to anyone with these health issues.