We survived 4 days of HBL, and today is also the start of PSLE. 💪

This time round, I never set up any schedule for the girls mainly because I wasn't very ready and since it's only 10 days 说长不长，说短不短. I have so much things not settle yet so I decided to let nature take its course. 🛶 船到桥头自然直。

Day time was pretty manageable, because the girls are busy with online work and homework. I prepare their snacks earlier which I shared on my IGS, or u can swipe left to see.

I started this in May which I shared on my blog (link in bio). Starting, they do not know how to control and finish the snacks before the "school" ends. Too bad no replenish. 😝
After awhile they get a hang of it and don't bother me about snacks, hungry etc.

They only keep calling me for IT stuff (no sound, no screen, change backgrounc) which is getting on my nerves especially when I'm trying to listen to my lecturer talking. 👹

It's not easy for us parents, it's also not easy for the kids.. although it seems like they are enjoying.. but occasionally they miss their friends, the social life they have and their emotions let out channel is greatly affected. Plus the uncertainty for those who are preparing for exam.

Sometimes not having a schedule, letting ourselves to relax awhile, it's good for our mental health.

Not sure how long this "one step forward, 2 steps back" restrictions will last.. 😅 it's good to rethink by changing our mindset so we can handle this pandemic better.

All the best to those who have kids doing PSLE! And may we all stay positive and love. 🥰

本週三，AIT副處長柯傑民（Jeremy Cornforth）於全球合作暨訓練架構 (#GCTF)「以科技力建構韌性及加速落實永續發展目標」線上國際研討會開幕致詞中強調：「儘管台灣被拒於門外，無法有意義地參與世衛大會及許多其他國際組織，今天的活動將能凸顯台灣仍以許許多多方式分享專長、並運用其科技長才，幫助國際社會解決你我共同面對的種種挑戰。美國會持續致力協助擴大台灣的國際參與空間。」

AIT副處長柯傑民、外交部長吳釗燮、日本台灣交流協會台北事務所代表泉裕泰、美國駐聯合國副大使蒲杰夫（Jeffrey Prescott）及駐紐約台北經濟文化辦事處處長李光章於週三一同參加了全球合作暨訓練架構 (GCTF)「以科技力建構韌性及加速落實永續發展目標」線上國際研討會。自2015年全球合作暨訓練架構啟動以來，這是第一次聚焦探討科技如何能增強韌性並加快實現可持續發展目標的進程。

✅副處長致詞稿請見：https://bit.ly/2Y6NAP8
✅新聞稿請見：https://bit.ly/2Y2aExM

On Wednesday, AIT Deputy Director Jeremy Cornforth, Foreign Minister Joseph Wu, Japan-Taiwan Exchange Association Chief Representative Hiroyasu Izumi, Deputy to the U.S. Ambassador to the United Nations Jeff Prescot and Taipei Economic and Cultural Office in New York Director-General James Lee participated in a virtual Global Cooperation and Training Framework (GCTF) workshop titled “Building Resilience and Accelerating the Sustainable Development Goals (SDG) Through Technology.” Since the GCTF’s 2015 program launch, this is the first event to focus on how technology can bolster resilience and accelerate progress towards meeting the SDGs.

In his opening remarks, Deputy Director Cornforth said, “Although Taiwan is prevented from participating meaningfully in the World Health Assembly and many other international organizations, today’s event will highlight the many ways that Taiwan is sharing its expertise and using its technological prowess to help the international community solve shared challenges. The United States remains committed to expanding Taiwan’s international space.”

✅Deputy Director's remarks: https://bit.ly/3CTcqAs
✅Press release: https://bit.ly/2Y42KEp

Here are a few early versions of the Battoos dress pattern, with some items that didn't make it into the final design. 🦇 Including: bad luck fortune cookies, bat strawberries and a version of the pattern with pumpkins! I decided to lose the pumpkins so you can wear it all year round (although tbf you can eat pumpkins all year round... pumpkin korroke!!). 🎃 All sizes are now in stock, including size 20. Please check the size guide as the sizing's ever so slightly different to the other dresses: https://www.cakeswithfaces.co.uk/product/battoos-dress/

土管を解体する前にもうちょっと有効活用したい！　と思ったら土管に詰まって出られなくなったまる。今までの穴よりは大きいので、たぶん土管の高さによって中でつま先立ちになっているためと思われる。
I wanted to make more effective use of the pipe before dismantling it! Although the hole was larger than usual, Maru could not get out of the pipe.
Because of the height of the pipe, he is probably standing on tiptoe in it.
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カレンダー2022発売中！
壁掛け： https://www.amazon.co.jp/dp/B094J76SZG
卓上： https://www.amazon.co.jp/dp/B094J6Z2TT
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Blog: https://sisinmaru.com/
Instagram: https://www.instagram.com/maruhanamogu/

大家中秋節快樂！
之前在Totoro IG有提到過Totoro生病了。
媽媽其實在今年過年的時候就剪了影片想記錄這件事，
沒想到一拖就拖到現在了。
這幾天終於增增減減上字幕做出了這個影片，當作個小紀錄吧！
Totoro生病的來龍去脈紀錄如下(文章超級長XD)
------------------------------------------------------------------------------------------------------------
Totoro在去年10月底確診了腎衰竭。
他在去年9月底的時候先是精神不好，體重下降，水喝異常多，沒多久右腳莫名的腫起來，但是完全沒有外傷。
因為腫起的右腳有戴腳環，醫生和我們一開始都懷疑是不是在哪邊勾到拉扯到造成的，先做了基礎糞檢後吃藥觀察。
之後雖然他精神好轉了，但腳還是一直沒有好，甚至開始長出一顆小白點。
最後在醫生建議下做了抽血檢查，並對小白點做細針採樣。
結果出來，他的尿酸指數飆高到正常值的五倍多，小白點檢驗結果是尿酸的結晶，確診為腎衰竭。醫生說，看過這麼多玄鳳都很難看到一隻有這麼誇張的尿酸指數。
原來他的右腳無外傷莫名腫起，是尿酸堆積造成的痛風。
我們不停的想，是什麼原因造成的呢？

和醫生討論後，原因可能是因為他一直無法斷奶，主食一直以來都是靠人工餵鳥奶粉。而一般鳥奶粉是幼鳥用，蛋白質含量較高，長期下來對腎臟造成負擔。

他為什麼無法斷奶呢？
這個也是快五年以來一直困擾著我們的問題。他小時候一個月大左右，曾經生病不吃飯，體重只剩下瀕危的50幾克。那時媽媽先咬牙學著用軟管少量多餐灌食維持營養，甚至半夜都要爬起來餵，慢慢的讓他胖到70多克，精神體力也好很多。
當他看似恢復健康有精神，我們想讓他自己開始學吃時，卻發現他的體重會無法維持。每當掉到66克左右像是病鳥的體重，我們就不敢再繼續嘗試下去，而把奶量加回來，他的體重也才回升。
找了愛吃鬼同伴吃的津津有味給他看也沒用﹙望向咕嘰快100g的胸肌…﹚，只要我們想嘗試減量，他就會漸漸消瘦。
曾經看過醫生，檢查便便嗉囊無異常，詢問了這個狀況開怎麼處理。醫生說就只能盡量找方法讓他自己吃，但體重掉太誇張的話也只能再補奶。
Totoro一直以來除了這個問題之外，就是個活潑亂跳皮到不行的小鬼頭，所以我們在他約兩三歲的時候漸漸放棄了嘗試，現在非常後悔於自己的無知和短視。以前總想著，等有時間要來想辦法讓他斷奶，就算要我一顆一顆餵他也行。結果等有時間的時候已經來不及了。
一開始知道這個消息真的很崩潰，就像聽到作為我避風港的家人得到絕症般，每天看著他自責懊悔著。甚至跟老天許願，只要他多活一年，我就願意減一年性命給他。那陣子幾乎沒法好好做自己的事，只想照顧他，陪著他，心情跟著他的病況時好時壞的起伏著。
腎臟病是不可逆的，所以只能給他做支持治療，打輸液、吃降尿酸和止痛藥。
飲食方面醫生建議既然他自己沒法吃飽，就把幼鳥奶粉換成一般滋養丸，選擇蛋白質含量不要太高的打成粉泡給他吃。
前兩三個月我們幾乎每天跑醫院讓醫生給他打皮下輸液，因為他的指數雖然有下降，但還是一直沒有回到正常值之內。
看著他每次打完針腳濕濕毛亂亂的，心情很差的樣子，就會跟著很難過，
那陣子上網查了許多鳥類腎臟病的照護，隨著抽血結果不停調整尋找著適合他的飲食。
記得是在過年前左右，Totoro的指數第一次降到正常範圍內。
雖然是在及格邊緣，但還是超級開心。而我後來也跟醫生學了打輸液的方法，才大大減少了跑醫院的次數。
到現在Totoro維持著定期血檢，指數還是在邊緣上上下下的。我們根據血檢照醫生建議調整著輸液次數，也微調著飲食。
腎臟病很麻煩，給他太多營養怕他代謝不掉，但不給營養又不行，我們只能在中間小心翼翼地尋找著平衡點。
他的尿酸指數降下來後，血檢結果變成營養不良，我們嘗試著微量增加餵食濃度後尿酸又貌似會跟著增高。於是現在就維持著較低濃度的滋養丸奶，持續著每天的輸液和吃藥來達到不完全平衡但可以接受的狀態。
一方面也盡量讓他自己吃穀物，這隻雞上輩子大概是太上皇，一定要有人陪在旁邊才會願意自己吃，鳥奴們只好定時盯著他陪他吃飯。
他的精神活力現在大部份都還是很好，還是很愛磨屁屁，心情好的時候喜歡跳舞唱歌學狗叫。看著他狀況穩定，雖然血檢結果仍上上下下著，心也漸漸寬了下來。
他也讓我們學到，與其每天懊悔過去，擔心未來，珍惜現在擁有的每一刻才是最重要的。

Totoro，再來要去哪裡玩呢？



Totoro was diagnosed with kidney failure in last October, and he has gout thus his right foot is swelling.

We were nearly devastated when hearing about the news, and tried to think why he’ll have such a disease. Maybe it’s because he’d never really successfully weaning and were fed with baby parrot hand feed formula since he was born (That was a long story, he couldn’t sustain his light-already weight and eat by himself if we stop hand feeding him).
We’re having regular subcutaneous fluids and medicines to support his kidney function for almost one year until now.
Although his urid acid level is still lingering between normal and abnormal value, he is having rather stable condition in recent months, dancing and singing when he has a good mood.
The video was shoot after Totoro’s diagnosis.
Totoro teaches us that, it is better to cherish the moment we have than regret over past decision or worry what might happen in the future.
#玄鳳鸚鵡#鸚鵡腎衰竭#TotoroTheCockatiel

Dragon Ball GT OP「DAN DAN Kokoro Hikareteku」Ru's Piano Cover | 2021 Version
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Since I played the new version of Dragon Ball Big Medley two weeks ago, my dragon ball soul has been awakened. ʕ•̀ω•́ʔ✧ Tonight I will share the new version of "Dan Dan Kokoro Hikareteku"~
Although Dragon Ball fans are often divided into two factions, some people think that GT is the perfect ending, and some people think that Dragon Ball Super is the real work. To me, as long as there is Dragon Ball, it’s great! ❤️

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#DragonBallGT #DANDAN #PianoCover #DANDANPiano #DragonBallGTPiano #SSJ4 #IzumiSakai
#ドラゴンボールGT #DANDAN心魅かれてく #ピアノ #DANDANピアノ #坂井泉水
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